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Snapshots from a Shared Journey Positive Health Program – ASPIRE By Sandra Spence 01.02.08 ![]() Photos: Steve Williams In 2004, the UCSF Positive Health Program (PHP) at San Francisco General Hospital created an international training arm called ASPIRE: AIDS Services, Prevention, Intervention, Research, and Education.
Hope Walks In with a Smile Steve Williams, Volunteer Peer Educator, ASPIRE, Matubatuba, South Africa, June 2005 "My name is Steve and I have HIV," states Steve Williams from a stage on wheels in a village market. When those words reverberate around the crowd in this region of South Africa where one in four are infected with HIV, for a few minutes, stigma's grip of silence and denial is loosened. With the help of a Zulu translator, Williams tells his personal story, then yields the stage to educators who sprinkle the crowd with facts about how to avoid transmitting the virus. Soon after Williams began ART in 1999, his newly revived immune system overreacted to a latent tuberculosis infection in a case of what is called "immune reconstitution syndrome." He spent three months unconscious and near death at San Francisco General Hospital (SFGH). After a lengthy but successful recovery, it is clear that Steve's glowing good health isn't just skin-deep; it's embedded with an optimistic attitude and a resilient spirit that run deep and strong. He never expected to find himself a world away from San Francisco, but Vandenberg invited Williams to accompany him to South Africa as a volunteer peer educator. "I had no idea what I was going to do," admits Williams with his big smile. But he soon found plenty to do and attracted a following wherever he went. His healthful presence alone inspires tremendous hope in patients who are scared about their diagnoses and have yet to see the power of ART. "Patients love to see someone who is HIV positive and who was very, very sick now doing better," says Williams. With his unassuming manner and African American background, Williams connects with them in a unique way, often inspiring individuals to reveal their positive HIV status and seek help. "I don't really feel like I train people," he says. "I'm just talking to get them to open up." We Want Our Story Told Guy Vandenberg, Steve Williams, Nzega District Hospital Tanzania, 2007 Three men—grandfather, father, and son—approached Williams and Vandenberg at the end of their presentation to an HIV/AIDS patient support group in Nzega, Tanzania. All three were HIV positive and on antiretroviral therapy. When they heard Williams was a photographer, they insisted he take their picture and tell their story to others. In Tanzania, stigma around HIV/AIDS is strongly rooted, yet these men were not afraid to have their picture taken and their story told. They wanted others with HIV/AIDS to know how ART could improve the quality of their lives. What had emboldened them? First, the effectiveness of the treatment. The grandfather had been unable to walk when he was initially brought to the clinic, yet, as the recipient of antiretroviral therapy through a program driven by EGPAF with training support by ASPIRE, he made a dramatic recovery. And then there was Williams's inspiration. If he could come all the way from America to share his story of hope, they wanted to add their own story, too.
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